Ok, so where did I leave off?
Monday: CD 4. Looks like it is tapering off after all. I have a cup of java at Whole Foods while waiting for D2 to show up. I realize later, that I am not supposed to be having caffeine for a month before my doppler ultrasound, but whatever, it tastes good, and isn't that all that really matters?
D2 and I shop all afternoon. I introduce her to Tuesday Morning, and she vows to do all her Christmas shopping there, from now on. I buy new bathroom accessories, Christmas ornaments and baby blankets. I take her to the same Chinese restaurant I had dim sum in the day before. The menu item isn't as good. My bad for ordering curry in a Chinese place. I confess that I bought tickets for a Frank Sinatra tribute she wanted to see for her birthday. But I need dressier clothes. I buy a dressy black tunic at Mervyn's and a black crepe broomstick skirt at Dress Barn. I go back to my aunt's.
I am lying on the couch watching news of Katrina, when I get the sensation that I've wet my pants. WTF? I go to the john, and sure enough, I've leaked blood all over my capris. Odd. Haven't had that happen in about twenty years, but I chaulk it up to the biopsy last week, and get another Ultra OB and change into my jammies. Meanwhile, I call my friend S and then D2 and casually mention to both about the leaking on CD4. They are concerned. I am not, until I soak through that tampon in about a half hour. I decide to call the after hours clinic number, and get a moron who keeps me on the line for about 10 minutes trying to figure out who to send my page to. Good thing I'm not literally bleeding to death. I lie, and tell her my cell phone is about to die, and can she just have someone call me back. I tell her I am an IVF patient, when she asks.
About 10 minutes later, a nurse calls me back. I explain the situation, and she seems concerned. Then I tell her I'm technically a GC DE patient, and she tells me she'll have one of those nurses call me back. About 10 minutes later, one of my nurses calls me. She sounds concerned, and decides to page one of the RE's. Meanwhile, I have given up tampons and I alternately walk around with a wad of TP in my pants or sit on the toilet, draining. About 10 minutes later, the RE calls. I think she is going to tell me to go to the ER or something, which I kind of whine that I don't want to do. She tells me to switch to pads, and the ER isn't necessary unless I'm soaking through a pad every 15 minutes. She wants me to go to the clinic for an ultrasound and white blood platelet count in the morning. My aunt comes home from her trip and sets me up with some of her menopausal Kotex. She is a retired nurse and is a little concerned, too. I grudgingly go to bed with the wad between my legs and only soak through two, during the night.
Tuesday: A nurse calls the house at 7:30 to tell me to come to the clinic at 9:45 for my ultrasound. I wake up, go to the bathroom and notice about a tablespoon or two of "blood jelly," on my pad. I seem to have tapered off again. I shower, insert a tampon (I'm a rebel, and don't want "pre-appointment crust") and head out.
I have my blood drawn (which apparently includes another pregnancy test!) I am called for my ultrasound, the tech asks me if I need to use the restroom, I take the opportunity to remove my tampon, which is only streaked. Then I proceed to have my ultrasound and doppler blood flow check. There are no signs of any abnormal problems. We conclude that I probably had a clot that I passed on my own this morning. My uterus is looking so good in fact, that she asks me why I'm using a GC. This pleases me.
I report up to my RE's office and think I'm there to talk to the RE or a nurse, but they want me to drop trou for an internal exam. He feels my fibroid, and asks me how I'm feeling. I tell him the whole story from biopsy, to this morning, and that I was never in pain, just kind of freaked out. He said I did the right thing to call, better safe than sorry. He says it's unusual to have a heavier period after an endometrial biopsy, since they've actually taken some of the tissue out, but that I probably had a blood clot left over from the procedure. I concur. I tell him I'll see him tomorrow. I pick up a Doxycycline prescription on the way out of the hospital, wondering why I didn't have one last week, for the much more invasive biopsy.
I go shopping for a new suitcase to hold all of the goodies I've bought in the big city. I get a 30" pullman 50% off at J.C. Penney's. I then go back to my aunt's and lay low for the afternoon. We go to Macaroni Grill (again!) for dinner. I am barely spotting anymore. I try to read some more of Dan Brown's Angels and Demons before bed. I hate his writing style, but it's fast paced enough to keep me going. I thought The Da Vinci Code was equally annoying, so I should have known.
Wednesday: I hang out most of the morning, checking email, reading, etc. I take a bath to really clean my bits and pieces and shave my legs. I decide to leave early for my 3:00 appointment at the clinic, so I can find a pair of dressy shoes for the show later. I discover DSW Shoe Warehouse. I find a really cute pair of dressy Coach thongs, but they don't have a size 10 and I can't justify $129 for a 9 1/2 that doesn't really fit. I find one other pair that will work and its 80% off. Hooray! I think. Not so fast, I must have expensive taste because they are, if I read the tag right, 80% off of $2000. Even if they are 80% off of $399, they would still be the most expensive shoes (by a dollar) that I've ever owned. I decide I can do better. I've watched every episode of Sex and the City, and I don't ever recall hearing of a pair of shoes that cost $2000. I mean, I'm sure they exist, but with a blue 80% off sticker on the box, in a strip mall? I decide to try Famous Footwear and find a cute pair on sale for $25. Now that's more like it. I go next door to a Ross - Dress for Less store. How is it that I've never been in one before?! I buy a new black fake fur trimmed suede coat for $59, a pair of Levi's for $5.49, a embellished tunic for $19.99 and a maternity top for D2 that was $11.99. Good thing I have that new suitcase!
I head over to the clinic. I am prepped for my hysteroscopy. I say that I've had one before, so I should be ok. I ask my RE if he's sick of me yet, and joke that I want him to really take a good look "up there." He says he hopes that was long enough, because he's seen all he needs to see. I'm told to get dressed and head over to the conference room for a regroup.
He sits down and proceeds to tell me all about my last cycle, and whether or not he thought the Saizen was effective. I ask if he knows we're moving on to DE. He nods, yes. Then he hits me with the results of my clotting panel and biopsy, that I requested.
Not only do I have TWO (homozygous=more serious) mutations for the MTHFR clotting disorder, but I am ALSO missing the beta-3 integrins in my lining! Both problems can cause implantation failure and miscarriage. I am floored! I knew there was something else wrong with me. I've been begging for these tests for years! This is huge! And hello? Blood clots? Uh huh...
I can tell he feels like the clinic has done me some disservice, but I try not to make too big a deal out of it. Now is not the time to start burning bridges. He tells me that I will need to take Folgard to up both my folic acid (4 g daily) and my B 12 and B 6. He would like to have my homocysteine levels checked on a 12 hour fast. If they are elevated, I will have to take Heparin injections 6 weeks prior to IVF, during pregnancy, and 6 weeks post partum. I tell him I would like to come back in the morning to have that run before I leave town. He also tells me that I will be taking three Depot Lupron shots 28 days apart before the cycle, to hopefully, temporarily, restore the missing integrins. I am so excited to be a little less unexplained. He asks if I've ever been diagnosed with endometriosis, and I (again!) tell him yes, a mild case, by laparoscopy 5 years ago. Has anyone there, ever bothered to read my chart? I'm starting to get a little pissed. He sends a nurse in, and I let her know, that I know, they dropped the ball with me on my other two cycles there. I get some idea of when I should start the Lupron, etc., which is kind of hard, since we haven't been matched with a donor, yet. She says they can keep the donor waiting in the wings on BCP's while I finish my treatment.
I head back to my aunt's kind of floating. Pissed and relieved at the same time, if there is such a thing. I try to call D and my friends but have trouble reaching anyone. Finally, one by one, I start telling everyone. D is pissed, too, and thinks we deserve a refund.
D2 picks me up for dinner and the Frank Sinatra show. I order a rack of lamb and they send out a rack with 8(!) chops. We have dessert to celebrate our September birthdays, and head to the theater. The show is a little Broadway for my taste, with women singing Sinatra and dance numbers, but when one guy sings "My Way," I suspend my disbelief, and tear up a little. They also play our wedding song, "The Way You Look Tonight." My mind is racing all the way home and I have trouble sleeping, so I pack. Finally, I take a Doxy, a pre-natal and two Tylenol PM, and fall asleep at about 1:30 a.m.
Thursday: I wake up at 6:30, get a shower and rush to the clinic. I realize that they never gave me the mammagram order I needed for K and that they never ran my communicables. My favorite phlebotomist decides to get to the bottom of it for me. My nurse tells her I'm "current," from June, so she doesn't run them. I go up to the DE GC office and aks for the mammagram order. My nurse gives it to me, and I ask why they wouldn't just re-run my communicables while I'm here so they'd be good for 6 more months, not just 4. She tells me they are blood and swab cultures now, and I can do them if I really want to. I am already running late and decide that maybe she's hinting that I'll be matched with a donor within 4 months and I really don't feel like dropping trou for the third time this week to be diddled with again. So I say a fond farewell and get out of there.
I pick up some coffees at a drive-thru espresso stand, fill up the tank ($3.29 gallon!) and stop at my friend A's on the way to my aunt's to say good-bye. We drink our coffee, watch the horror of Katrina on the Today show, think of ways we can help, coo over her 1 year-old, and bitch about our clinic, the number #1 clinic in the country. A used DS to conceive her son, and is thinking of cycling again in the new year. I stay about 30 minutes and head the 8 blocks over to my aunt's.
I load up the rental car, and say my goodbye's. My aunt tells me that my cousin, his girlfriend and her mother and all of their 3 dogs and 5 cats made it out of New Orleans on Saturday and are holed up in a hotel in Houston. Before I leave, I call my uncle and tell him they can stay at our house if its any more convenient. It's at least free. He thinks my cousin is going to try and drive back to check out the damage to their houses. We all hope that he doesn't.
I get the rental back to the airport, and a Cranberries song comes on reminding me to take this CD out of the player. (I've lost so many CD's in rental cars!) My friend S sent this to me, and I love it. The singer had struggled with infertility and miscarriage and the lyrics are poignant. Plus some of the profits go to charity. Anyway, I get on the shuttle, find my terminal and gate, grab an Egg Mcmuffin at 10:28, right before they switch to lunch, and make my flight to Dallas on time. From Dallas I catch my connection and make it to our airport by 4:45. D has left the Honda in long term parking after grabbing his own rental to take on a business trip. Unfortunately, this is the 2nd time he has forgotten to leave the parking ticket. I angrily call his cell and he finds it in his wallet, and gives me the date, time and reference number. I hope this is enough to appease the parking nazi attendant. It is, but I'm still embarrassed. I go to Linens-N-Things and Tuesday Morning on the way home and buy some towels. I get them home and nothing I've bought matches my bathroom. I decide to take everything back the next day.
My cats are home. They've been staying at my brother's since Easter, since we were supposed to put the house on the market and move to Switzerland. I'm glad to see them. I call all my girl cousins of child bearing age on my mom's side of the family and tell them about my hereditary "issues." D gets home with the dogs at about 10:00. I'm really glad to see them too.
Friday: D works from home. I google the hell out of MTHFR, and think I might have skewed my results with the pre-natal I took when I should have been fasting. Midday, we take his rental car back to the airport. I follow him in the Honda. He stops to fill it up and we watch in disgust as a couple in a big 4 x 4 fill their tank AND about 10, five-gallon gas jugs. It's that kind of hoarding that is causing shortages and gouging across the country. Didn't anyone ever watch It's a Wonderful Life? You don't make a run on the Building and Loan. We talk about New Orleans and go to our favorite "hole-in-the-wall," Cajun restaurant for dinner, and have some Abita "Purple Haze," to "help" the Louisiana economy in our own way. The owners have family in Lake Charles, but everyone is safe. We all agree to say a rosary and a few extra hail mary's for the hoarders in the country and the poor people in Louisiana, Alabama, and Mississippi. D and I decide what we can afford to donate. We go home and watch a Netflix DVD, Sin City. Violent, but I like it, for the artistic value. Freaky, though.
Saturday: It's 3:00 and I still haven't showered. It's pouring here, and we're getting ready to watch another DVD, Suspect Zero. I haven't heard back on the homocysteine level, yet. K should be able to get her mammagram soon, and start her mock cycle.
Things should be pretty calm for awhile, now. D's out of town for 7 days next week. (sigh)